What in the world is that? First I need to learn how to blog then I can define the situation, feelings and routine.
Today I'm about 2 months behind on information about my story . I needed to find a place I can be creative, talk to others and teach others things I am learning along the way.
My son of 21 , just turned 21 on Halloween found out 2 months ago as a healthy young man just getting his independence and figuring out what he wanted to be when he grew up, that his independence was going to be put on hold while he fights for his life.
His sister updates everyone which I will add to this blog , because her writing is impeccable and she spells out things I haven't had time to even comprehend much less accepted. For me the story is quite different and I'd like to share with you what I see and feel and learn along this journey. In hopes I can help someone else and maybe someone else can reach out to me from theirs experience as well. Possibly we can build a world of support for many.
So for today I'll just tell you I'm a mother of 4 a grandmother of almost 3 now and on a journey I never could of imagined would happen in my family, much less my son Zak, the kid who never even had a cavity, a cold.
I wish I could remember the day it started, you'd think that first day would be ingrained , however its a blurr I barely remember already and its been only two months. One day he was at work and working out and had his first apt. he just moved into. Then one night at work he hit the floor , passed out and ended up in the ER getting 6 bags of blood transfusion.
I had called him the night before and no answer, I text him and no answer, his youngest sister had been trying to get him as well and it just didn't seem like him to not answer. So since it was a Friday I let it go as he may be out with friends and I'd call in the a.m. again.
I text and said,"are you ok", not expecting what I got.. he replied " I am now".. WHAT THE HELL !!!!!!!!!!!!!!!!!!!!!! I dialed him as fast as I could and he said "I passed out at work , I'm good now,they gave me blood transfusions and don't worry I'll be going home soon. I said, "ughhgh I'll be right there."
He just kept saying he would be out and don't come and don't worry.. I said ok I'll wait an hour if your still there I'm headed there no matter what you say.
I barely waited and headed straight to the hospital an hour away.. He was getting blood tests done and it came back Acute lymphblastic Leukemia. WHAT???????????????? I couldn't even take that in, I don't think it even hit me till later,, I went numb first, immediate denial was my arena I jumped into. I didn't get long to hang out there as he was transferred to Children's hospital ASAP.. It has been a whirlwind ever since.. Days are running into each other, feelings overlap, fundraisers are in motion, friends are calling, facebook posts are all out for support and the story of MY WARRIOR SON.
Zak hit the floor with 10% of his blood and 95% of it was leukemia. There not sure how he even survived with that little of blood in his system. Signs? yes there was , did we ever think it would be this or something bad , NOT in a million years. He knew to eat better, don't drink, workout, work hard, stay on track and keep moving. That's the kind of mother he was raised by, it was a part of who he is , to stand up, try again and always put health and wellness first.. HE DID and Thank GOD he did because the foundation I built for him as a child had been held up by him and has saved his life . His body fights for him, is taking care of him, his reserves are amazing and he has done well.
This is the round where the HARD part is hitting.. the mac truck so they say. Before I tell you too much more Ill post the updates my daughter wrote to give you some insight on our situation.
For today in the library at Children's hospital in Seattle I'll just get this started and change and learn along the way.
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