It is March , YIKES, I will attempt to catch up this month for April's newsletter.
These are highlights of the last few months I couldn't get my thoughts on paper.
Zaks transplant was December 13,2013. Cheyenne rocked out some awesome cells for Zak and he was given the gift of life. Thank you angel Child Cheyenne.
I spent every single day with Zak in the hospital , we watched every movie on Netflix and got hooked on a series that had 8 seasons. Oh my what a journey that was. Sitting on my butt watching movies and TV , Zak would sleep here and there but mostly he would look over at me and say ," MOM you awake still?"
I left the hospital daily at about 2 am sometimes later sometimes a little earlier, usually after our decision to stop the series because it was always so good there was never a good time to stop.
I would walk to the parking lot and run the parking lot now and then just to stretch, jump in my car, head to my room and Pass out, to get up a few hours later and do it again.
Zak and I shared many many talks I share with you along the way. I learned a lot about my son and he told me a lot about what kind of mom I am and had been his whole life. Most good but in his tough exterior ways he cant be too sweet to me, it wouldn't be tough.
We all hold a sort of tough exterior and my kids all have it, each one of them are so sweet in their own rights ,they will not tell you that though, don't mess with them or what they love or you will bite of more than you can chew.
Zak had a virus that kept him in isolation the entire time he was in the hospital, so being locked up he calls it in his room for so long left me no choice but to fight for his freedom. I saw him going down hill emotionally, getting depressed and needing air. This was not the life he was born to have, So we together made a plan of action.
Everyday we had goals, he met them, and I gave them to the Drs. every morning on rounds. They would evaluate and then listen to my plea, sometimes add some things to the list and we conquered them together so he could get some time out. A green card so to say, a 4 hour pass to home a day. We got it. That one thing took him leaps and bounds in health. All this will be caught up I promise in future blogs as I go. Too much to read or write all at once.
Zak was released in my care with a grocery bag of pill and a list of TO DO's.
We together conquered them ALL, IV pumps at night, pills 4 to 5 times a day. Hickman port cleaning, Lines to flush, apps to go to daily . With weight to gain and strength to gain we had our work cut out. For us both!
A partnership of Mother and SON to create the health he was meant to have and a future brighter than the sun.
This boy is a music lover, he NEVER Stopped working the entire time he was sick, days and nights, he wrote, he created beats on his beat machine. He put his music on social media, every music site he new of. He had a magazine interview and shortly after he got the call.............................. I will fill you in ........................ watch for details.
As of today he is WAY ABOVE any transplant patient they have EVER SEEN IN SCCA HISTORY!!! LITERALLY!! more details to come.........................................
